I currently serve as the co-Director of the DuchenneConnect Registry and co-PI of the DuchenneConnect PPRN. I am also a certified genetic counselor. DuchenneConnect is a patient report regstry supported by Parent Project Muscular Dystrophy. It has been in existence since 2007 and has over 3500 registrants from all over the world. Duchenne is a rare, pediatric neuromuscular disease mainly affecting boys.